Of course Mike had to work Mother's Day so after we went to church the kids and I went out to the course to golf with Mike for a while. The kids of course loved it. I hope everyone had a wonderful Mother's Day!
Wednesday, May 18, 2011
"Thick as Thieves" this is a statement I use to refer to my children quite regularly. They either fight from the moment they see each other in the morning or you can not sperate them. We have had some beautiful weather and the kids have decided they like to hang out on the balcony and take all of their pillows and blankets out there with them. They eat there meals out there, they listen to the birds, watch for dogs and talk. It is so precious!
Tuesday, April 26, 2011
Saturday, April 2, 2011
Bubba Love's annual heart checkup on Wednesday and it was a very mentally, physically and heart breaking day.
I am a huge believer that you must follow your instincts in life and trust that God will guide down the correct path. I never felt comfortable with the first cardiac facility we were out so I asked our pediatrician if we could transfer to Mott's Cardiology department and Uof M. We had Madison's surgery there and loved it. They are amazing in every aspect possible. You can tell that "little people" are all they deal with. I was very randomly given one of the highest ranked Drs in the department. Unfortunately due to work Mike couldn't go with me and thanks to my dear friend Beth who kept Madison all day for me it was just me and my little man.
The day was a whirlwind: Up by 6, in the car by 7, at the facility by 8 and in the EKG lab by 8:15. Bubba Love as you can imagine was not thrilled by any of it. I could not believe that even got a successful EKG of him. The NP and Dr spent almost an hour with me talking to me examining him and answering my thousands of questions. Normally they would do and echocardiagram of new patients but Bubba Love was never going to lay still for it and I had given him milk that morning so they could not give him anything to relax him. The Dr was going to send us home without one and just do one at his next "yearly" visit. He said that based on all the information that he had and what he could hear that he had a very general VSD (heart murmur) it was not serious and within a few years we would no longer need to even monitor it. Great news, right? I get that some parents would have been like ok if the Dr says its ok and what is best then I will trust him and not put my child through anything else. Well anyone who truly knows me knows that I am not one of "those" parents. I said NO I feel like it is best if YOU echo him so that you can see his heart for yourself. That was always the plan to do one and I "feel" like it needs to be done. I will not feel comfortable unless you do it. Crazy, insane, stubborn, pig headed, and many more names is I am sure what he was thinking about me and I was ok with that. Luckily they could fit us in in 2 hours as long as I did not give him anything to eat or drink before we came back. Fine no problem. So then Bubba Love and I began our walk around the massive facility, finding places to play, watch a little movie and then more playing. Well 3 hours later they finally call us back to give him the medicine to relax him. Once the nurse finally came in she accidentally knocked over his medicine and had to go back for more. The echo went well he was such a trooper.
My first moment of concern: the nurse made a strange concerning sound while doing the echo.
My second moment of concern: nurse says "I am going to let the Dr. look at these to ensure that I have everything she needs (Bubba's Dr is a man).
My third moment of concern: The head of radiology (Dr. Amy) comes in and spends 15 more minutes taking images of his heart.
My fourth moment of concern: major wait between echo and Dr Adam coming in to see me.
My fifth moment of concern: the look on Dr. Adam's face when he walks in the room.
It all explodes in my face:
He begins by saying, "MeLeah I am so sorry I have no clue how this happened, but the original Dr. (at the first clinic) mis diagnosed your son. He does not have a general VSD, he has a much more serious sub-pulmonary VSD that puts his aortic valve at risk.
I don't know how to describe the feelings that I experienced in those moments: Anger ( I am going to harm his first Dr. rash I know but valid???), Sadness, Shock, Thankfulness that I had trusted my heart and God that he needed the new echo and many more feelings.
What a long 30 minutes it was hearing him explain the "new" VSD to me and answering all my questions, explaining all the risks and possible complications and the possible surgery that he would have to have if one particular complication were to arise.
SURGERY!!!!!!!!!! Wow, 4 hours ago he said "he will never need surgery for this vsd" now we are talking about surgery on my baby boy.
I felt like someone had ran over me with a truck at the beginning of this talk then he just backed up and ran over me again. My poor baby boy how do you ever treat him the same, look at him the same. More importantly how do you trust the medical system, how do you trust one physician over another, how do I trust that they finally have the diagnosis correct.
We go back in 5 months to have all the testing done again. We will go to echo first then to EKG then the Dr.. They will look to see if the VSD is closing at all because this would not be good. My understanding is that the valves (pulmonary and aortic) have 3 sub-valves within them and the membrane that separates these valves actually start to fill in the hole causing a breakdown of the inner valves which is a major problem. If this were to begin to occur we would have to do surgery to correct it. I do not truly understand what the Dr. is talking about but I did my best to follow him and understand the diagram that he sketched for me.
In the end Bubba Love needs your prayers more than anything else in the world. My tears and time spent worrying are wasteful. He needs prayers. I thank God that he gave me the wisdom and stubbornness to insist that the echo be done. I could have left that facility not knowing what was truly wrong with my son and who knows where we will be a year from now. You know us!!!
Thanks for listening and thanks in advance for all of your love, concern and prayers.
Tuesday, January 25, 2011
Madi waiting to go back to pre-op. She still has no clue what is coming.
She came very prepared!
She came very prepared!
Madi taking pictures to pass the time.
The pre-op play area! Thank goodness for this, we would have been in trouble without it.
Getting ready to take her wagon ride to the operating room.What an intense, crazy 48 hour period! My darling little Priss was born with an umbilical hernia that we have always known would have to be repaired, so at her 4 yr check up her Dr. told me that I really needed to get her to the surgeon to have it looked at. I decided that at this time in our life we are fortunate enough to live right down the road from a major teaching medical facility Uof M, so why would we not go there. To say that I love the Pediatric surgery dept of U of M would be a major understatement. The entire facility and staff are amazing. We went Monday for our first apt. with Dr. Jarboe and loved him but also discovered that she had two separate hernias that needed to be repaired. When we went to schedule the surgery I was told that they had an opening the next morning or it would be several months. GASP!!!! Wow not what I was expecting but I still took the apt.. Luckily our dear friend Beth volunteered to keep Bubba Love so we came home to get everything ready for the next day. Madi woke up the morning of her surgery with the biggest smile on her face and in the best mood. Everything was going fine until we arrived at the hospital and she started freaking out! She did well with everything, meeting all of the surgical team and staff until her surgery was delayed almost two hours. At 11 she started asking for food and began naming everything that she sounded good to her poor girl. Finally the resident came with his wagon to take her for "her ride". She willingly went with him and we began our long wait. After around 2 hours Dr. Jarboe came down and told us that the surgery had went very well and he was able to repair both hernias with only one incision. Unfortunately that one incision is above her belly button not in it (she will surely hate me for that in her teenage years). The repairs had been fairly easy to complete and all was well. Then we began the longest wait...RECOVERY!!! Arghhhhh!!! We waited for what seemed like forever before they took us back up to be with her. She was still asleep when we go there and woke up right after the nurse had updated us on her status. She was not a happy camper, but two rounds of morphine and a room and 2 nurse changes later she was much better, just very un-agreeable. After a very long day we finally got to take Miss Priss home around 5pm. It was a long evening but she slept thru the night. She has been very needy but after a fun visit from Erin and Bailey this morning she is now walking on her own and seems to be progressing thru the recovery process quickly. She is not taking any prescription meds anymore and is getting better every hour. She has a few weeks to go before she is completely healed and back to
normal but we are off to a great start.
Thank to everyone for all of your prayers and support.